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New
to this page…scroll and read from bottom entry to top, from oldest entry to
newest!
(The
newest stuff will always be at the top…so keep track of whatever date you see
stuff so you can scroll down to it as I add entries! Or remember there is a sitemap now!)
2/8/6:
Now I know why my mom said this page was so difficult to read & get…you
really need to start with the old stuff & read backwards through the page
to follow my SOC (or Stream of Conscienc…ness…how do you spell that word anyway…SOC…which
is my nickname with Laura Sylvester-)
Anyway…yesterday I was struck by my son’s stimminess…& how it fits into
this neat little package of Total Body
Burden…I remember when Dr Derksen & I went over her conference
presentation before Dr Klinghardt’s last conference & I mentioned that
stimminess is associated with neurotoxin movement/mobilization/exposure…what I
meant then was that when
neurotoxins are either introduced into the system (acute exposure…think of
smelling something) or are mobilized out of hiding (think of classic chelators)
while on the move they are affecting the nervous system. But now while here in Mississippi
a new thought has struck me about our children’s stimminess…first I have to
back up & say that I have always felt since 4 years ago when I picked the
brain of Karen at Specialfoods.com (I am not supplying a link here because I do
not want you to inadvertently get sucked into her vortex & wind up spending
WAY too much money to incorporate two vital pieces of the puzzle: optimal diet
free of allergenicity & a non-toxic environment
that meets the cost-to-benefit
ratio analysis for your family) I came away convinced that …& this is
HUGE!!!…our children SEEK out that which makes them HIGH (toxins & food)…think
stimminess & food cravings…I still believe this is probably true in part…but
now 4 years later with a much more global understanding of everything…back to
yesterday…watching my son stim…after 6 days of total neuro-sensory
down-regulation…what’s it all about…well here’s what struck me…the human body
is divinely intelligent at protecting itself from damage & always attempting
to repair whatever damage it was unable to prevent…inflammation is one such
mechanism (designed to bring the necessary equipment to the damaged area to
make repair)…perhaps the increased mobilization that would happen with any
successful treatment program has up-regulated his self-protective mechanisms to
sequester these toxins & pathogens with inflammation…for them the easiest
& fastest way to accomplish this is self-stims & eating food that they
are allergic to…My Take-Away is now different…Stimminess is not exclusively to
get “high” but I think can become a vicious addiction for many…but an attempt
to CREATE THE INFLAMMATION THAT IS INSTINCTIVELY SELF-PROTECTIVE…Perhaps this
is why the Vinitsky
protocol can almost immediately down-regulate stimminess (it is thought to have
direct impact on the Autonomic Nervous System & to mop up formaldehyde…which
is an everpresent off-shoot of a toxic system)…WELL that is my newest thought
that helps to explain one more thing with our kids…Now I have to focus on
making that calendar with the protocol…& finishing…more stuff! Also, check
out Coreissues…I
was just on the phone with Melanie from AMT & I realized this is still
going under the radar. It is basically an intro to PST, Hypothyroid, Gut
Dysbiosis which are underlying things to consider (in addition to the total body burden
model…& usually simple to investigate…
(524,
18947)
2/7/6:
Sorry I have not been able to add entries for over a week…I am in Mississippi with our son and
outstanding care-giver Oralia (I just don’t know what I would do without her!)
& I still talk to Andy regularly about all of our stuff…she’s in Nebraska
now but still a wonderful resource for me! …sorry but I never give them enough
credit for what I am able to get done! Anyway, Oralia is my best judge for how
Kellen is doing & she thinks he is fantastic…she so far in her almost three
year tenure with our family has commented
being impressed by “Amarillo muy bueno” about when we did Dr John martin’s
anti-viral protocol (very dated document, but gives the basic gist), Dr Vinitsky’s
folic acid/B12 protocol (that Dr
Klinghardt & Dr Derksen find highly effective as well!)…the program here
in MS & our triad of stem cells, neuropeptide
shot & MME
(we did them all together & immediately spent a month in Canada so she just
refers to the Canada trip…but I cannot determine what of the three or which
combo has seemed effective) & now we are back in MS at futuresunlimited.com
& she feels this is effective as well! Remember…it was after a protracted
trip here that he had perfect bowel movements for the first time in forever! With
nothing changing for the better in what he ate or took as sups (he’s on NONE
right now except vinitsky’s folic/b12 which has been consistenet) Anyway…it
just really takes me back to this whole model (which came from my son’s
seizures & trip to Ed Snap) of looking at this with neurological
inflammation being the fueling of the flame (which is what we are trying to get
out) along with the ever present spark of mercury). Everyone is talking about
neurological inflammation in the context of ANTI-INFLAMMATORY
agents/supplements/more things to SELL you! & that might actually sound
perverse after I just listed things that seemed effective for our son that were
outrageously expensive…but the take-away for me has been that the BEST ANTI-INFLAMMATORY
ON THE MARKET IS FREE…not only that but is available to anyone reading this!
I firmly believe in the years to come docs in TWA (the world of autism) &
if history continues…parents long before…that this is a starting place…probably
even before mercury…& boy doesn’t that probably freak some out…but here is
what I mean…to mobilize & chelate mercury (and ALL TOXIC SUBSTANCES for
that matter) you must ACCESS or come in contact with them!!! Plus many other jobs!…but
ACCESS is first! Have to run…
(512/18920/wow!)
1/29/06:
I am still determined about the every day entry here…but realistically will
shoot for 4 days a week! You probably noticed on Dr Klinghardt’s protocol the
extensive use of Chlorella…well
I thought you would like to read what Dr Mercola has to say about it!-
Note
that Dr Klinghardt doses much higher! Still working on the calendar with Dr
Derksen (Dr K’s arm for 3 years) Her new office number is: (425) 709-2787. If
there are any Rhett’s parents out there…check into the testosterone issue
…Melanie’s daughter was a classic presentation on lab results of a child who
would benefit from addressing her testosterone that was high! She is very
excited…we talked about when we became parents who knew enough to be EXCITED
when we got test results that indicated problems…knowing that meant potential
fertile ground for pay dirt!!!
Today was just a fantastic day by the way…I was just laying with me three
children in the bed cracking their toes…oh how truly bizarre to share that with
people! …& even stranger exchanging “gazurberts” when you blow air on the
tummy & make that farting noise…we were hysterical! Kellen is now in his
room with the blue light having a great time…which reminds me I wanted to
answer an email from a mom who was extremely frustrated on CK2 & lost the
email…my desire was to tell her to create a safe room for her child. I think
one of the biggest mistakes we can make is not prioritize our energy…cause we
only have a finite amount…well having a place where they can be safe from
danger, with some stuff they can do can really reserve some of your energy for
other times & activities they will need you for! We have always had a safe
room for our son (for a long time our youngest was in there with him until he
crawled in her “bed” one too many times, I left town with him long enough for
her to get used to sleeping with her sister)…it has a blue light, mattress on
the floor, & safe toys…it is a real salvation to be able to have time when
he is in there safely playing with energy going toward some other necessary
thing…just an idea to help!
Goodnight til…soon! I am
still waiting for feedback on the book!
464
1/25/06:
Today I went to see about the building I think would be perfect for the Gecko
center, but no go…oh well…I am still very proud of myself for prepping &
showing up at the office after he already told me no…but I had to make sure!
Anyway, Michael Nobbs if you are out there could you contact me. I was looking
for your email when I found this one…I
think it is so interesting how many things considered cutting edge it includes
& it is 2 years old! Well for any of you who check daily…you should be
proud…I am doing better now! Kellen got his neuropeptide
shot (#4 I think) today & was FANTASTIC!!! I also talked to Ed from AutismOne yesterday & will be doing
something at the conference & will start a radio show soon. Email me what you want to
hear about…other than the 70 hours of interviews with docs I already have “in the can”. Ed was saying he wants
current information & I was trying to explain how even my year & 1/2
old interview with Buttar I ask about HBOT, stem cells, MME, magnetico, Total Body
Burden (very valuable chart & New!!!) as well as the more obvious stuff
like TD-DMPS! Well that’s it for tonight…
1/24/06:
I am working on putting Dr K’s protocol into a calendar with a to do list…still
works in progress…but here it is…Calendar
support page & Detox Optimization
circuit ideas.
(441)
1/23/06:
Okay…so much for my ability to do daily entries right now…between Dr Klinghardt’s
Neurotoxin Conference & ROK’s
Klinghardt Autism conference last weekend…I am ready for a break…but
WOWZA!!! He’s just the dude! Everyone I talked to felt really empowered by his
presentation & with the Q & A with Melanie
Gentile, Dr Derksen & me! (actually, I think there was one mom who was
still very frustrated by the whole deal) But usually I feel this complete
malaise fill the conference halls of typical conferences…these paren ts &
practitioners were jazzed! For right now there is only one practitioner that
attended this conference that I have contact information on & seemed
totally on the right page: Cross
Roads …Dr Martha Grout, MD (she leaves next week to go to Russia to get the
GPV machine -Dr Korotkov’s) & I just
heard that she attended Dr Buttar’s
training too (which is tons of $$$) but I also just heard that some parents
have tried to contact her already &
response has been limited. Becky from ROK
& I will be working on a more comprehensive list of docs who have been
attending these conferences…I have some from the Neurotoxin one…but right now a
just want to give you Dr Klinghardt’s power point
presentation (sorry it is a pdf file for now) from this weekend! More later…
(426)
1/19/6:
I am down in the garage with my son…who keeps dragging people to the sauna
(grabs our hand to go out the front door, down the steps, bangs on the garage
door, takes your hand to the sauna, gets in, then reaches to close the door) At
first we thought it was so he could watch TV…since that has become almost
non-existent since our FuturesUnlimited
stays. Yesterday he was actually watching TV upstairs late in the evening when
he did the exact same thing…which only tells me that he is ALSO asking for the sauna at minimum! It
is amazing how our kids seem to crave two things: what makes them high
(neurotoxic exposures, stims, perseverations, food addictions) & what makes
them feel & do better…the challenge is distinguishing
the difference. Anyway, I have been in an overwhelmed mode lately…constantly
feeling tugged in multiple directions…always feeling like I have more to work
on than I have energy. Between healing my son, the book I am trying to finish
with Dr
Klinghardt, the center I
want to open, the rest of my family,
conferences I participate in & conferences
that seem to need to happen…& just aren’t without my nudging…I need an elf!
Update on my son is: when I came home from Dr Klinghart’s Neurotoxin conference
(part of my obligation for our writing the book together is that I go to as
many of his conferences as I can make – for free-but I met a great new
resource…Dr Husser…& I think a true friend to me & our cause…healing
our kids & all who need healing!) At home I was met with discharge papers
from the emergency room for my son. He had another seizure on Sunday mid-day.
It scared my husband & he called 911 & they went to the ER (that gives
you a visual on how scary it was in the warehouse in Calgary by me). It was
disappointing on some level, but the next day he was better than ever…looks
super healthy, walked right in on the bed & held my & my daughter’s
hand with a big old smile on his face! It just really reinforces my belief that
seizures are actually a healing mechanism in the brain…more like what The Institute
& Ed
Snap believes than the mainstream neurologist who my husband made an
appointment with for Thursday! & I always think of all the research money
that gets spent…& the plain old basic stuff they just DON’T know…it’s
crazy!!! I think I will feel more balanced after this Arizona conference &
we go back to Mississippi (it is
very relaxing there). As I write I realize that then there is the Yasko conference & AutismOne…such a cycle!
Sauna
info (to add to link) I am watching my son in the sauna. It wasn’t hot when he
got in after he had spent about 6 min on the treadmill. So it is not as hot as
usual. But now the video is over so it has been about 45 min & it is hot
now…but he is not sweating …instead he has classic PST signs with red cheeks
& ears. It is just making me wonder if there is a different mechanism in
place when you slowly heat up the body vs. put the body in a hot environment.
The MME would sporadically give him that same PST symptoms (which is also what
you look like with temp changes). He looks like he is ready to sweat now &
is very content so I am going to watch him for a moment, check the temp (it is
at 110, but with the FIR on full blast) & see when he starts to sweat…which
by the way…SWEATING IS THE NECESSARY OUTCOME…(& wiping away the sweat
regularly is another necessary piece of the puzzle) without them you are not
achieving your goal of maximizing your toxin elimination by increasing output
from exit routes (emunctaries) & minimizing re-uptake of toxins by
neurological system…That is the entire purpose of the sauna…sweat out toxins that
would otherwise need to find another exit route! If your child DOES NOT SWEAT
IN THE SAUNA…you need to figure out why & remedy that before you continue
sauna therapy…Now he is sweating a little…regular amount now!
…seems
like it all means something!
Important:
I recently answered a question on HBOT &
Chelation …that I think is timely!
1/18/6: I am tired, but checked the counter on
this & realized I needed to add an update per my promise: Detox Rules
& Total Body
Burden are what I am working on for this weekends conference in Arizona…I
give it to you for consideration!
1/8/6:
I am officially more committed to updating this page daily…as I see that it
gets a lot of traffic every day…I think mostly with people checking to see
what’s new! My mom even read it & we had one of the best conversations we
have had in recent years! Anyway…I realized that most people have an interest
in how my son is doing…I am happy to say he has not had a “S”…I won’t name it
beyond that, but I think you know what I mean…I don’t want to inadvertently
manifest one…this is with him on only 3 Depakote a
day…before Futures
Unlimited, Stem
Cells, Neuropeptide
Shots & MME
he maxed out at 40 “S”’s a day 5 weeks into being on 5 Depakote a day…so I feel
really good that things are going in the right direction…and he just seems
happy, healthy…and yeasty (which I haven’t had a chance to do a page on yet,
but providing an understanding of the “Milieu Theory” (scroll way down where he talks about
microbes)& how our kids will continue to have overgrowth in the gut and
surrounding damaged tissue as long as the environment is prime for it…no matter
how many anti-microbials on how perfect of a rotation we give our kids (which
can be helpful) but will not drastically change the situation! My son did oral
DMSA for the first time in his life (rectal)-DMSA was
what we did at the Edelson Center (along with IV-EDTA & DMPS) so he has
been showing signs that the yeast has gotten hardier & is the dominant
species of microbe in his gut (carb-craving, sudden outbursts of uncontrollable
laughter…which
I am actually celebrating because he was the low-energy, sickly kid when we
started…so even though it means he’s probably getting a shot of endotoxins from
the microbes…it’s just a joyous sound!) Tonight we did HBOT for 1 hour, WITHOUT
EXTRA OXYGEN, going back & forth between 1.1 & 1.3 as the upper limit
very slowly, not allowing my ears to pop by constantly adjusting the valve for
a slow pressure change, with the Alpha-stim
on Klinghardt’s amplifier blocks!.
Followed by the sauna & clay bath & to bed. Our “special” testing has
provided us some insights into the whole HBOT thing…using it more like a
lymph/cellular plunger (think of a toilet that is clogged {every cell that is
damaged} you need to apply & release pressure vs. hold it steady) –Dr Heuser – who did the first study with pre
& post spect scans on an Autistic child four years ago…is very intrigued by
the concept. Well that is what it seems like the HBOT is testing as doing…more
later…now tired after chatting with Becky about the conference in AZ & Dr
Derksen & …time to watch 30 min of brainless TV! Like this clip! (scroll
down to “Eye on Flu Shot!”)…goodnight for now…oh yeah & I found a great
building for the Gecko
Center…but it is not for sale…I’m hoping to change their mind this
week…help me manifest!
1/6/6: new links for chelation
information & Dr Klinghardt’s
Heavy Metal Detox paper
1/Friday…don’t
know the date…wowza…anyway, always seem to catch a cold when I slow
down…supposed to leave for Mississippi
on Sunday, fly to Seattle
the next Friday & to Arizona the next Friday for the ROK Klinghardt
conference, each time returning to MS to be & return with my son to LA on
the 23rd…but not sure I’m gonna do it…just don’t have the
energy…miss my girls…may need to postpone the MS piece…we’ll see!
Note:Email me to get Magneticosleep returned mats at 50%
off retail! Only while supplies last
1/2/6:
traveled home to LA today…TIRED, but had to respond to emails one resulted in: Family
Constellation information …more not sure when…gonna take a break!
1/1/6:
Also, did a ton of work adding LOTS of links to GeckoNeuroRegeneration.htm
Hopefully
today I will be adding Magnetico
Testimonials!
Just
added: HBOTstemcellsrelationship
, HBOTtestimonials
& email
answer about Dr K & D.
Today
I finished: tonsils
link, which helps to follow up with Dr
Klinghardt & Derksen’s protocol for autism.- & next I am going to
work on “The
Five Levels of Healing”!
Kind of weird to write that date…& by the
way…why does everyone write “0” then the year now that we are past the 90’s…isn’t
that part obvious…but like so many things in life we are creatures of habit and
after 100 years of writing 2 numbers…we just keep it up…wonder how many years
it will take before we just write the number, probably not until we are at “10”
& can be back in our comfort zone of writing two numbers again…well in the
meantime I will be rebellious & write just one number! This reminds me so
much of this journey of autism we are on…I have always been a little
rebellious…& I know for some this has created tension toward me (like the
reference to yesterday that I chose 4 years ago from such a complimentary place
to now & then it just seemed so right -despite the tension- that it was
meant to stay) …bottom line…I trust people rather than mistrust…if someone says
something works…I believe that at least with a subset of the people…it was
effective…skepticism is too time consuming…I am so nostalgic today, but if you
had ever seen me play 2 man volleyball you would see what I mean…I NEVER even
think about whether or not I can get a ball…I just go for it…people have a
blast watching me play because I am a little bonsai about it, hurling my body
anywhere without thinking…but the biggest thing is they think I am so fast,
which I am to a certain degree (at least before 3 babies, mold, lawsuits &
autism) but mostly I am just not wasting any time thinking about whether or not
I can do it…I am just going for it…& if it doesn’t work out…oh well, at
least I tried…& that is the attitude I have had about our journey in
Autism…if people claim something has worked for their child…then I am testing
it against other things that are supposed to work…& then I am going for it…
as long as the “do no harm” clause has been met…I think that is why I learn
about things “before” most…just because I am listening and attracting the truth
without a censor…& because you guys always bring it to me before you have
the guts to tell anyone alse about it!…I think that is why mainstream docs can
be so plodding on this journey…their entire belief system quakes under the
weight of any belief that the best medical interventions are OUTSIDE what they
learned in medical school! What about the idea that in a the hands of a truly
educated parent with access to good information and prescriptions as needed a
mainstream doctor could be obsolete…that the program Diagnose-me.com can do (unless they use
this as a tool…which I wish they would!) with the capacity only a computer has,
what NO doctor can do (even my beloved guru: Dr Klinghardt
who teaches me things I feel I would never learn anywhere else only teaches for
the hour of the appt. & in his many articles…that you have to figure out
exist) & that is …like for my son…ask 927 questions targeted at whichever
symptoms you answered yes to…that triggered a whole ‘nother set of
questions…that can pick out: mercury toxicity,
hypothyroidism, pyroluria, under & over-methylation, adrenal fatigue…on
& on & on…all based on your symptoms like: sweaty palms, lines on
nails, etc. … and all for $75! (that includes an email consult with a
naturopath) This is truly threatening to our beloved mainstream docs let alone
big pharma…and don’t get me wrong a lot of them are truly forward thinking,
helpful, etc. …oh too far out on my soapbox…sum it up to say: I would trade Diagnose-me.com, the ability to muscle
test, access to homeopathics,
supplements, frequency machines & color therapy
(click products), knowledge
& access to a few prescriptions over
99% of the docs out there any day of the week! Now I have said it & all
I would really like to see is more parents empowered for this journey no matter
what their access to docs is! Because
believe it or not folks more people are without the ability to access Autism
doctors than are with it.
12/31/5 My girls & husband left today…my baby cried…so sad, but
I’ll be home in two days…Kellen had a BAD day today, tons of yellow poop,
really craving carbs & it really made me realize how much progress we have
made with him & how great he has been during the Ed Snap
stuff & for the last month here. I just finished a link for Rashes, Sauna Therapy & Dr
Klinghardt & Derksen’s Autism Protocol.
12/30/5
New
page to check out that has all the DAY pages in
one place, listed alphabetically!…I kept getting emails from people saying “I
had no idea there was so much on your site!” & it is true you can only find
it as you get to the links…so here is another way!
12/29/5:
Today
I checked some of my pages counters & this one really has a lot of
traffic…so I decided I better step up because I made a commitment to have this
be the place with my new stuff…I fibbed…for the last two weeks all the new
stuff I have been writing has gone to: http://www.defeatautismyesterday.com/questionsanswered.htm
…because after my husband told me I had a two week cell phone bill for here in Canada of $1400 I had
to find a new way to pass the time with my son..so I started answering
questions on CK2…got sortof
addicted to how much writing I was accomplishing in the form of answering these
questions…all stuff I felt like I should have already completed & put it
all in the Q & A link!
Thank GOD 6 days
have past & my son shows no signs of the seizure he had on the 23rd
slowing him down or changing his course.
We’ve stayed on 3 Depakote a day…& he has been great! There is no
doubt we are seeing signs of improvement, just sublte. Today Becky from ROK
biomedical told me about: New video of
recovering 11 year old on Dr Buttar’s new IV protocol!!! (click on “Jamie
Returns”) It made me cry! I also finalized a page for Dr Klinghardt…finally
telling most of the story on why he’s my guy! He finally responded to my last
email: “We are on for Jan 21 in Phoenix. I want to steer the poeple towards you
and your way of working with it
all since it is the most intelligent way….the project that we are committed to and the idea of
helping every kid anywhere on earth to get through this as gently and successfully as possible.”
I cried when I got
his email too! I worked so hard…here I go again crying as I write this…to “get
him on our team” & it’s almost hard to believe he really is…without him it
is so hard to see clearly the journey before us! With him…WOWZA…we are on our
way:
Check
out the center we will hopefully be openeing together! “If you
build it they will come!”- Now I am going to go read a book! Not even on
health!
12/23/5:
Wow,
what a night! My son just had three of the best days of his life! Happy,
energetic, active, vocal for needs, tons of initiation, responsive to demands
(as if he knows what I want by the situation or cue or could it be receptive
language finally coming out of hiding –he just turned 6). He spent time at the
park, at the store, lots of time under the MME watching a video (he kept coming
out from the MME to sit next to it to watch & I kept putting him back under
it, whereas on the first few days he seemed to crave being under there). Bottom
Line: three of the most active (him moving around), happy & neurologically
stimulating (not what he needs) days he’s ever had. He has been down to three
depakote, from 6 at his peak with really no sign of seizure activity except
yesterday, twice it looked like his head just pitched slightly forward for
about a half a second for no reason. I intended to give him 4 depakote that
day, but at 9:30 he fell asleep having had 3 around 11 pm he got up & was
his energetic self. He played a while, had two bananas because he kept wanting
food & then back to the MME watching “Barney’s Great Adventure”. He started
to reach over to me & come out from under the MME (he’d only been there
about 10 minutes for that session) & had the worst seizure he has ever had.
He has had 5 grand mal seizures before, but this was the worst! & here I am
alone in a warehouse by myself with him in another country!!! It scared me so
bad on so many levels…is he going to be okay, am I doing the right thing, did
this seizure damage his brain (the jury is way out on that one when you ask
people but the Institute in Philadelphia thinks no!)
Read
more at Seizures.htm
Here
are the articles on it:
The Nature of seizures & anti-convulsant considerations &
A BILL OF PARTICULARS ON SEIZURES AND
DISCONTINUING ANTICONVULSANTS
http://www.iahp.org/Seizures_Anticonvuls.335+M54a708de802.0.html
http://www.iahp.org/Articles_about_Seizu.309+M54a708de802.0.html
http://www.ihthttp://www.iahp.org/Detoxification_From.302+M54a708de802.0.htmltp://www.iahp.org/Seizures_Epileptic.85+M54a708de802.0.htmlahp.org/Detoxification.38+M54a708de802.0.html
&
Dr Steenblock thinks it initiates stem cell growth in the damaged area but that
this can be outweighed by the Apoxia (lack of oxygen) if it is a grand mal
seizure where they stop breathing & lips turn blue (like my son’s last
night).
12/24/5:
This
morning…ABSOLUTELY NO SIGNS OF ANY LOST GROUND OR THE SEIZURE HE HAD LAST
NIGHT!!! Thank God…because I think that is the biggest fear when he has a big
one…it creates such an altered unhealthy looking state of being that it is hard
to believe they will ever come back, let alone back to where they were after
they sleep (always almost comatose after a long one). Needless to say this
makes me question everything, which of course I proceeded to do with Andy
(Nebraska) see link on energy testing.
I
too know children who have “recovered” with only ABA & I think the listmate
suggesting a temporary toxic overload was probably hitting the nail on the
head. What I fear is puberty for these children & continued vaccinations
because the underlying predisposition to handle toxic burden poorly remains. I
would rather be the parent forced to go the extra mile that results in a better
appreciation for the tenuousness of health & what that means for my whole
family. Because I believe the longterm outcome for the families forced to
understand the reality of our health & healthcare options early on will be
brighter. I can’t change my reality, my son is a plodder & I make mistakes.
The knowledge that has come from this extends beyond anything I could have ever
hoped to understand…& this is the only truly valuable knowledge that exists
on the planet…how to be & stay healthy (knowing that this all has a very
spiritual foundation) & that it translates into happiness despite what from
the outside would look like a semi-miserable situation.
12/19/5: Long night last night. He fell asleep
at 7pm, up at 10pm & at 2am showed no signs of sleepiness. I finally had to
harness him next to me & fell asleep. Today, found myself looking at the
chelatingkids2 site again today…and answering a question…it feels much more
productive now that I have a way of putting it on the site! The question was on
stem cells. It just seemed too relevant
to skip. I said I would also talk about HBOT.
What a can of worms this will be. Bottom Line: potentially harmful to stem
cells.
December
18, 2005: We are continuing our stay in Calgary & I started answering
questions off chelating kids2…my Q & A’s are here.
December
13, 2005: We have two more days of the MME…seems powerful, happy, toe-walking,
responsive…but will need to see what happens in the long haul. Heard about the
use of Fava Beans in Parkinson’s from Joyce Bonlie…& they had dried one’s
at the Italian Market & my son ate 1/2 pound before I read this article…hope all is well! I am pleased
with where we are…one thing is for sure…he weighs more!!! & we have taken
him from 6 Depakote to 3 yesterday (going thru 5 & 4) & he has had no sign
of seizures for about a week (and then only one small one)…thrilling with no
pause to be thrilled!
December
9, 2005: Today is my daughter’s 4th birthday, and like her sister Kyla’s
birthday I am off with our son. In October we were in Mississippi
& now we are in Calgary, Canada @ the main headquarters of Magnetico. Some of you may have the 10 or 20 gauss pads (my son sleeps
at home on the 20 gauss, 3 feet away from electrical sources). Anyway, Dr
Bonlie from Magnetico offered to let us come do the MME & stay in his
apartment here to see if it could help our son. He has done a lot of detox but
just recently we are focusing more on the regeneration piece of it. We did stem cells on Novemeber 30th,
on December 2 & 9th
did the brand new neuro-peptide shots (now they will be every 3-6 weeks) also
available through Dr Steenblock.
Starting on December 2nd, our
son has been doing about 12 hours a day under the MME
(Dr Dean Bonlie’s 10 ton magnet). We will complete about 150 hours (with oral
DMSA at night & minerals in the am) & head home on Dec 15. & on Dec
27th will go to Mississippi
for another round with Ed Snap. Between 16 & 26 we will be doing a heavy
duty detoxification protocol that we muscle tested (we did this whole sequence)
including 3 – 30 min dives in the HBOT with 2 exercise, sauna, bath, massage
sessions in between the sessions. (very similar to what we did at the Edelson Center (side note: how sad that when I
went to look for his site this is all I could find…Dr Edelson’s center was a
success for our son – improvement at the time on the ATEC of over 30%. Dr E was
missing what it took to manage a cutting edge facility in a way that
consistently kept clients happy. It saddens me that doctor’s in America have to
fear telling us what they believe will help our children. We were sent a
solicitation to sue Dr E as well, but faxed it to show him instead. He was
cocky, grumpy & rough to deal with on every level…his facility reflected
this…& I believe this & lack of consistent results with all the
children resulted in these law suits) only with the HBOT
w/alpha stim around it). What we found
which is different than what most are doing is that he does not want the extra
oxygen & he wants multiple short dives vs. long dives…we feel this means
the HBOT is acting more like a cellular pump than an oxygenator (because new
stem cells don’t like increased O2). Well as usual I am trying to cram way too
much info in one huge run-on sentence, but it has been a long time since I have
utilized this form of journaling as therapy…so bear with me. My son seems to be
doing great!
Only fear is that the first night & day we were here he did it all night
& all day almost with his DVD & by the end of the day had every sign of
dumping too much metal/toxicity & no binders on board (my mistake). We took
a night off , eliminated time with the DVD (lower his neurological
imput/inflmmation) & started on DMSA & he has been doing better, with
today being his best day yet! Say a prayer! This is the biggest surge of stuff
we have done since the Edelson Center. The good news is his seizures have
stayed down (1-1/2 second one every 3 days) despite going down from 6 to 4
pills of Depakote/day! It is
amazing how quickly we forget to celebrate the victories we have. Back in
August when he maxed out with 40 small seizures & some days 2 back to back
1plus minute ones…I would have been thrilled to know we had succeeded in
getting him to where he is today. If my neurologist had had his way we would be
on our 3rd
anti-seizure drug (keeping all three despite lack of success) with god only
know what results! You know you can’t even get into a sponsored program to try
the Ketogenic diet without “failing” on
3 drugs…HOW INSANE IS THAT!!! (right now he is testing for that diet but with
essential sugars)
I
feel good about what we are seeing…just don’t want to set myself up for
anything except what is meant to be!
Coming
Soon: Klinghardt Conference in Arizona! It is at Arizona State University
January 21 & on the 22nd he’ll
be doing a Family Constellation. The cost is $50 for parents…go to www.vsan.org to the Rokbiomedical & click
on Klinghardt conference!
I
wouldn’t miss this one & we are going to use it as the foundation for the
conference we are still planning for 2007!
Most
Important of ALL. This is an email response to a recent question which is full
of good info:
Dear Mary:
First, sorry it has taken so
long getting back to
you...we have had quite a
ride...we just finalized a 4
year law suit against the
builders of our home that
culminated in mold so bad it caused our son's
Autism/Neurotoxic
Encephalopathy.
I have a moment right now
because it is Thanksgiving &
after a day at the relatives
house I left my husband &
daughters & came home
with my son who is happily
watching a video (which he
never gets to do anymore
now that he is on a
neuro-sensory down regulation
protocol)
www.futuresunlimited.com This was where we
went after he started having
seizures.
I don't normally have time
for these individual
emails, but decided this one
would start my "blog"
since you asked such great
questions!
If you want to do the Yasko
protocol, all of your
questions will be generously
answered at the
www.autismanswer.com site. I
don't like to tell people
what to do as much as explain
what I feel like I have
come to understand the
problems are & how to look at
all the options that are out
there...that i am aware
of!
If you watched the video
repeatedly & you don't spend
a lot of time doubting Dr
Gordon, but rather trust his
ascertions, which I do to a
great degree...then you
are well on your way to
getting the bigger picture of
what is going on with your
child.
Now I would simply like to
share with you what has
been working for Dr
Klinghardt & Dr Derksen who have
been comprehensively
treating children with Autism:
This is the contents of the
document they put together
for the attendees at the DAN
conference in Long Beach
in November, 2005: Dr
Derksen's contact info: (206)
355-2937
doctoramy@comcast.net (if you wait until Jan
she can do remote/phone
consults)...sounds wacky but
it works!
"Commonly Prescribed
Autism Formulations"
Dr Dietrich Klinghardt &
Dr Amy Derksen
IMPORTANT INFORMATION:
The following protocols
represent formulations
commonly prescribed by Dr Dietrich
Klinhardt & Dr Amy
Derksen in their practice.
Dr Klingardt utilized
Autonomic Response Testing
(ART) to determine which
formulation to use and to
create an individualized
protocol for each patient.
The listed formulations do
not represent complete
protocols and are not intended
to suggest complete
treatment. They should be shared
with your healthcare
practictioner before adopting
into your health and
wellness plan.
Both doctors suggest an
approach that adopts no more
than one or two of the
formulations listed under each
condition, based on the
recommendation of your
healthcare practitioner
before undertaking any diet,
exercise, or other health
& wellness program. Complete
protocols and most products
available at AMT Pharmacy
(866) 828-8203 ask for Melanie
Gentile.
GENERAL DETOX SUPPORT:
Glutathione (transdermal,
lipoceutical, nebulized, IV)
Hydroxocobalamin/Folic Acid
(Dr Vinitsky)
Thorne Calcium Magnesium
Citrate powder (to deep
bowels moving)
Fibercleanse (for toxin
binding)
Cod Liver Oil by Carlsons or
Nordic Naturals
Epsom salt & baking soda
baths
HEAVY METAL TOXICITY/METALS:
TD-DMPS (from AMT pharmacy)
TD-EDTA
Phospholipid Exchande
(BioPure)
Chlorella (BioPure)
Cilantro Tincture (BioPure)
- topically applied
NDF
Multi-minerals
Heavy Metal Detox
(Transformation Enzymes)
LIVER:
Liver Life
Hepatica
Dandelion Root
Burdock
Ultrathistle
Castor Oil Packs
Coffee Enemas (not on young
children)
KIDNEY: (This organ is an
absolute must to support if
you are chelating metals!!!)
Renelix
Burdock
Kidney Drainage
(Transformation Enzymes)
Matrix Electrolytes
(BioPure)
Accupuncture/Neural Therapy
ENDOCRINE SUPPORT:
Mannatech Plus
IMMUNE SUPPORT:
Ambrotose
VIRUSES:
Selenium
Vitamin A
Monolaurin
Olive Leaf
Red Algae
Mycophyto Complex Tea
Dr Amy Yasko's Remedies
Viral Detox (Transformation
Enzymes)
Trifal by Ayush (also
digestive support)
Viral CD
PARASITES:
Vermox
Biltricide
Albendazole
Tinadazole
Freeze Dries Organic Garlic
(BioPure)
Alinia
Sputnik
Parasite CD
FUNGAL:
Ampotheracin B
Diflucan (1-3 months
continuous)
Nystatin
Yeast/Fungal Defense
(Transformational Enzymes)
Fungus CD
LYME:(Every Autism child we
have tested so far through
Igenex has been positive!)
PC-Samento (BioPure)
PC-Noni (BioPure)
SiroNil
Cumanda
PhytoLymex (Nutriwest)
Lyme CD
TONSILS:
Pleo Not &/or Pleo San
Pseu, followed by Pleo Sancom
for 1 year
Have a full ENT evaluation
for chronic enlarged
tonsils since this backs up
drainage from the brain
NEUROLOGICAL REHABILITATION:
Contact Futures Unlimite (662)
327-7333 for
Chronologically Controlled
Developmental Therapy
Again, this is simply a
reprinting of the document
that was distributed. I
would go see Dr Amy in a
heartbeat to test your child
& suggest a custom
protocol which she can d
remote...just be patient
until Jan 2006...she just
opened her new office!
I hope this helps &
either answers some of your
questions or makes them
unnecessary!
Good Luck!
Dana
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